lupus – Meanderthals https://internetbrothers.org A Hiking Blog Sun, 23 Oct 2016 12:53:40 +0000 en-US hourly 1 21607891 Paralyzed hiker completes Appalachian Trail https://internetbrothers.org/2016/10/23/paralyzed-hiker-completes-appalachian-trail/ https://internetbrothers.org/2016/10/23/paralyzed-hiker-completes-appalachian-trail/#respond Sun, 23 Oct 2016 12:53:40 +0000 http://internetbrothers.org/?p=21309

At first glance, Stacey Kozel looks like any other serious hiker: strong and completely in her element in nature. The 41 year old from outside Cleveland is both of those things but she’s also incredibly determined. Because unlike most hikers, Stacey is paralyzed from the waist down but has, amazingly, accomplished what many able bodied […]]]>

At first glance, Stacey Kozel looks like any other serious hiker: strong and completely in her element in nature.

The 41 year old from outside Cleveland is both of those things but she’s also incredibly determined. Because unlike most hikers, Stacey is paralyzed from the waist down but has, amazingly, accomplished what many able bodied people don’t even attempt. Stacey just completed the Appalachian Trail, in its entirety.

“It feels pretty amazing, actually,” she explained.

It took seven months for Stacey to hike from Georgia to Maine, about ten miles a day. Sensors attached to her feet trigger microprocessor equipped braces that stimulate her legs to go through the motions of walking. The technology certainly assisted but, really, it’s Stacey who made it happen.

“I don’t want people to give up. We never know what the future holds and we might even surprise ourselves,” she noted.

Doctors diagnosed Stacey with the autoimmune disease, Lupus, at 19. During the years, the disease has robbed the former athlete of more and more of her body. After the last flare up, Stacey was in a wheelchair and had to re-learn how to walk. Stacey’s worried the next one will leave her unable to sit up so the time to tackle the trail…was now.

“I wanted to take advantage of my arm and core and see what I can do,” noted Kozel. “The worst day on the trail is still better than the best day in the hospital.”

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The incredible technology that’s helping this paralyzed woman hike the Appalachian Trail https://internetbrothers.org/2016/07/03/the-incredible-technology-thats-helping-this-paralyzed-woman-hike-the-appalachian-trail/ https://internetbrothers.org/2016/07/03/the-incredible-technology-thats-helping-this-paralyzed-woman-hike-the-appalachian-trail/#respond Sun, 03 Jul 2016 14:42:48 +0000 http://internetbrothers.org/?p=20154

Most people would have given up years ago. She is not most people. 41-year-old Medina, Ohio, resident Stacey Kozel has undertaken an enormous task: hiking the entire 2,190 miles of the Appalachian Trail. For most, that would be a mighty feat unto itself, but Kozel has an additional obstacle, to put it lightly: her legs […]]]>

Most people would have given up years ago. She is not most people.

41-year-old Medina, Ohio, resident Stacey Kozel has undertaken an enormous task: hiking the entire 2,190 miles of the Appalachian Trail. For most, that would be a mighty feat unto itself, but Kozel has an additional obstacle, to put it lightly: her legs are paralyzed.

Kozel was diagnosed with lupus when she was 19 years old, and it has slowly stolen much of her muscle function during the past 22 years.

Lupus is an autoimmune disorder that causes the immune system to attack healthy tissue. It affects everyone differently, and symptoms can be cyclical. That’s how it has been for Kozel — every couple of years, she would have what she termed a “flare-up.”

In her case, the disease directly attacked her central nervous system during each flare-up, causing her to lose muscle function. In March 2014, the disease dealt her legs a death blow.

From her electric wheelchair, she desperately searched the Web for anything that could help. Eventually, she found the Ottobock C-Brace. To call it a brace is a little simplistic, because it functions more as a mechanical exoskeleton. It allows someone with paralyzed legs to walk again because, in essence, it does the walking for you.

As she wrote on Appalachian Trials:

“My goal is to bring awareness to these braces so people know they exist and hopefully it gives more people the ability to get out of their wheelchairs and out exploring the world. There are people that qualify for these braces that either do not know they exist or it gets stopped with an insurance denial. I hope WHEN I make it back to Mt. Katahdin on my thru hike, insurance companies will have a much tougher time telling others that the braces are “not necessary.”

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